Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Romans 8:28
Romans 8:28
I can't believe we are already into November. Where does the time go! Before we know it we will be through Thanksgiving and onto Christmas (which is my favorite holiday).
We are all doing well here in the Delaney house. The girls keep growing. They finally seem to be gaining weight at least a little bit. I am hoping that it keeps that trend since it's been such a battle. Abby crawled for the first time a couple weeks ago. Just a couple strides but even so we count it as her first crawl. She's been doing it fairly often and we only hope she gets better and better at it! She has also been pulling up to her tall knees and trying to grab things off the ottoman which is a new skill as well! Erin is still walking along all the furniture and her play yard. She actually walked pretty far in her gait trainer the other day at therapy. The furthest she has ever gone in the gait trainer without help! We were all pretty excited. She for some reason is taking a little while to figure out how the gait trainer works. It's hard because we know she can do it because she walks along all the furniture all the time. But we know she will eventually get it and be cruising in no time. *edit* So I wrote all this, this morning and this afternoon at therapy Erin took off!! She walked all over the therapy building, up and down hallways, through the waiting room, and did laps in the gym! Everyone was so excited and almost in tears! I will be posting a video soon!!! In other news we leave for Philly on Saturday. My mom is coming with me to help out since Riley will be home working. We are always excited to see everyone and show everyone how the girls are doing, but we don't look forward to the long drive. As the girls get older the drive gets a little harder each time. And recently Erin has been getting antsy in the car if we are in it longer than an hour or so. So I am a little nervous but hopefully she hangs in there. We will be bringing lots of toys and movies to keep her occupied. As always please say a prayer that we get into the Ronald McDonald house. We have gotten in every time thus far but there is always a chance that they are full. If they are full I am not sure what we will do since hotels in the area are more expensive than we can afford. It's always nerve wracking waiting to hear if they have a room for so we just keep praying they do! Also if you could say a prayer for our car situations. We aren't going to be taking our car to Philly this time. My mom has graciously offered to take hers. My car as of recently has cost a crazy amount of money to get fixed, and it still has the check engine light on. We didn't know that the car would have all of these issues and that the restricted title would cause us lots of hassles when it came to recall type stuff that we have now had to pay out of pocket when the company was supposed to cover the costs. My dad has been working tirelessly on my car (thank the Lord because it's been in the shop 4 times and cost a ton of money) but it still has some issues. So since my car is past inspection, and not able to be inspected before we leave, we aren't taking it. We also are down to one care. Riley no longer has a car since his died and was going to be too much to fix for its age. So we are trying to figure out what to do to get him a car since we weren't planning on getting any new cars for a while. It's pretty much a disaster at the moment so please pray that things smooth out and we are able to get all the issues with my car fixed, and are able to get another vehicle somehow. In a totally new topic, I've been thinking a lot about self care. It is something I see a lot of articles about as i scroll through my special needs parents face book pages. They all say that if you don't practice self care that you won't be able to keep caring for your children because you will burn out. I can see this point of view, I really can, but from my point of view sometimes self care is just really hard. By the end of the day I don't want to go for a walk, or read a book. I was to binge watch Netflix and eat snacks and fall asleep. But recently I have been realizing that I need to fix some things. I have never been the skinnies girl. Even as a teenager I struggled with my weight. It's just always been an issue. When I was pregnant with the girls I actually lost 12lbs in my first trimester because I was eating healthy. I was really healthy throughout my pregnancy and after I had the girls I weighed less than I did when I first got pregnant. Then enter stress eating. While the girls were in the hospital the one thing that made me feel happy and relaxed was eating. Especially at the Ronald McDonald house. They always had delicious comfort food, and lots of snacks and desserts, that combined with eating greasy food from the hospital cafeteria every day I gained a lot of weight. Unfortunately those habits followed me home and I am paying the price for it. I weigh more than I have ever weighed in my entire life and I hate it. So after talking with my husband and some other family members I decided to do something for myself. I joined weight watchers. It has been so hard, but I finally feel like I am doing something for myself. This is something I have control over. I don't have to eat when I'm stressed, or happy. I can take those emotions for what they are and move on. I realized I haven't really done much for myself since the girls came. Life has been about making sure they had an advocate in the hospital, making sure they're getting everything they need at home, and making sure they are happy and healthy. It's been a huge priority. Thats basically our life, making sure the girls' are good. But now that they are doing well and we are on a good path, it is time to do something for myself. In the past two weeks I have lost just shy of 10lbs! It's not much but it is a huge deal for me since I haven't done anything but gain since the girls were born. This is something that will not only benefit me, but my whole family. I realized how tired I always was and how burnt out I was feeling. And even though this is hard it is so rewarding. I want you to know that you can do it too. Whatever it is that you have been wanting to do for yourself do it. You won't regret it! Sometimes what we need is parents is to focus on ourselves once in a while and it gives you a renewed self. It's hard having children with specials needs. It takes up your entire life. You can't live like a typical family and the days can get really dark and hard if you aren't careful. So take a few minutes, I know you're tired, I still am tired, but i promise you'll be happier. We love you all so much and are so grateful for your encouragement and love! We love the Delaney twins family! It's such an encouragement to see comments, and receive cards, and messages. We wouldn't be able to do this on our own! They say it takes a village, but we have a village that spans the world!!!
3 Comments
Dawn Kirk
11/8/2019 04:57:47 am
Good for you Heather! I’m so happy for you! Congrats on ten lbs.! Just take it one day at a time...don’t fixate on a number, concentrate on how you feel...that will motivate you! It will be up n down and that’s all part of it! You’ve got this! So happy to hear all the good news about the girls! It’s all so amazing! Safe travels to Philly and back! 🙏🏻🙏🏻🙏🏻 for more good news! 🙏🏻🙏🏻🙏🏻 for your car issues and finances. ❤️🙏🏻❤️🙏🏻❤️🙏🏻❤️
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ashlee walker
10/26/2020 04:32:10 pm
LOVE SPELL TO BRING BACK EX LOVER AND RESTORE BROKEN RELATIONSHIPS
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Isabella Lucas
11/10/2022 04:59:06 am
My ex-husband and I had always managed to stay friendly after our divorce in February 2017. But I always wanted to get back together with him, All it took was a visit to this spell casters website last December, because my dream was to start a new year with my husband, and live happily with him.. This spell caster requested a specific love spell for me and my husband, and I accepted it. And this powerful spell caster began to work his magic. And 48 hours after this spell caster worked for me, my husband called me back for us to be together again, and he was remorseful for all his wrong deeds. My spell is working because guess what: My “husband” is back and we are making preparations on how to go to court and withdraw our divorce papers ASAP. This is nothing short of a miracle. Thank you Dr Emu for your powerful spells. Words are not enough.
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AuthorMy name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good! Archives
March 2021
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