Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Romans 8:28
Romans 8:28
This post is more of a prayer request than an update. But is also partially an update.
I have been talking with my doctor over the past week and he has put me in contact with CHOP, Children's Hospital of Philadelphia. As of right now we are working on getting some insurance hopefully worked out (please please please pray that the insurance works out, otherwise this could end up being way more costly than it needs to be). But I am hopefully (if insurance works out and I get accepted to be a patient) will be heading there in a few very short weeks (dates are tentative due to insurance, I will post them for people to pray when we have a definite answer) to have an MRI and more ultrasounds done. I am so nervous. There is just so much that I have no clue about. This is a completely new territory for me. That being said we are still not fully set on using CHOP as the team that will separate Abby and Erin. They apparently have one of the best pediatric radiology teams in the nation so for an MRI and extensive ultrasounds they are a great place to be. We are going to try an consult with at least one other Doctor. I am just having some trouble getting ahold of him, and getting information. But I am trying to find the best person to give Abby and Erin their best chance. Now that you know my update please pray for Riley and myself. This is not the easiest process, and making these huge decisions that will very much impact our children is a huge burden. One wrong choice could result in devastation. I am terrified of making the wrong one. I have never had to research doctors, or hospitals, or procedures, or anything like this before, and neither has anyone in my family. This is all completely new to me. I am trying so hard to keep my stress levels down because I know that isn't good for the girls, but that thought almost makes me more stressed. So please please pray for us. This is so important and we just want to make the right choice in where to get the best care for our girls. We really appreciate each and every one of you who have invested time, prayers, support, and encouragement in our lives. Having so much support and so many prayers have made such a difference in how we have gotten through thus far. We still have a far way to go, but I know that with God all things are possible, and that where His will is, He will make a way. Proverbs 3:5-6 “Trust in the Lord with all of your heart and do not lean on your own understanding. In all your ways acknowledge Him, and He will make your paths straight.”
11 Comments
Leah
4/26/2016 05:05:13 pm
Praying for your health and the girls' and praying for you to have peace about the decisions you have to make.
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Donnah
4/26/2016 05:42:07 pm
Remember that God will close doors, so that you follow
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Jolly Marshall
4/26/2016 06:09:11 pm
Maybe you should get in touch with the parents of the McDonald Twins. They boys are similarly joined.
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Heather Delaney
4/26/2016 06:38:05 pm
I have actually emailed back and forth with Nicole about her boys and her doctors :) I appreciate the thought. She has been very helpful.
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Misty Albright
4/26/2016 06:44:00 pm
My twins were separated at Cincinnati childrens. Philadelphia is a great choice and so is Dallas in regards to separating twins. Mine were joined at the chest and abdomen. So different than yours. I'm praying for you (momma) and your family. It is a hard road. Don't forget to breath and believe these truths you placed on here from scripture.
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Linda Bruins
4/26/2016 07:26:55 pm
Will pray for you Heather, Riley and your babies. My daughter's nephew has a genetic condition and has often dealt with CHOP for surgeries and care. Let me know if you need the mom's phone no. for any information. This family did not have conjoined twins tho. Love to your parents from the Bruins
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Darcy
4/26/2016 07:58:46 pm
Don't go to Children's Hospital in Aurora, CO. They are a bad & corrupt hospital.
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Jessica Terpstra
4/27/2016 06:33:42 am
Heather, we love you and are praying for you. I have had scares in pregnancies nothing so serious as this but I know about stressing and trying not to stress and the cycle they circle. I am praying for your girls and following along. I am also going to share with my children and they will pray for all 4 of you as well. God knows your heart and he chose to give you these babies and this experience no matter the outcome. Hang in their. Your sister in prayer, Jessica
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Anne Sousa
4/27/2016 07:50:08 am
You, Reily and your baby girls are in God's Hands. He will lead you and guide you and grant you His peace and wisdom in the name of Jesus!
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Betsy Lipari
4/27/2016 04:22:04 pm
We are all praying for your pregnancy- the baby girls and for Reilly. Praying that God would clearly direct your paths. Making His yes and no,s be clearly heard. Hold on tight and let Him direct you all. Excited for you too!! What a privilege to carry these precious twins. God is good all the time! Bless you all.💖 Betsy from New Jersey USA friend of your aunt Debbie 😄
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Isabella Lucas
11/10/2022 05:19:09 am
My ex-husband and I had always managed to stay friendly after our divorce in February 2017. But I always wanted to get back together with him, All it took was a visit to this spell casters website last December, because my dream was to start a new year with my husband, and live happily with him.. This spell caster requested a specific love spell for me and my husband, and I accepted it. And this powerful spell caster began to work his magic. And 48 hours after this spell caster worked for me, my husband called me back for us to be together again, and he was remorseful for all his wrong deeds. My spell is working because guess what: My “husband” is back and we are making preparations on how to go to court and withdraw our divorce papers ASAP. This is nothing short of a miracle. Thank you Dr Emu for your powerful spells. Words are not enough.
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AuthorMy name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good! Archives
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