Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Well we have officially relocated. We made it to the Ronald McDonald House in Camden, NJ on Wednesday at about 8pm. Our trip up wasn't bad, we didn't have any delays or anything like that. Although saying goodbye wasn't and easy task even though I've been preparing myself for weeks, it still was not easy and still is not easy. Our first night was a little tough for me to be completely honest. Leaving home knowing I won't be back until my babies are healthy enough to come back with me is a huge thought process for me. Everything here is new and not the easiest to figure out and therefore is a little uncomfortable. The Ronald McDonald House is wonderful. Our room is themed from the cheesecake factory so is full of cakes and cupcakes and happy things. We have already found little gifts left outside our door ( I can't wait till my girls are old enough to understand what people have done for them), and have met many wonderful people. It's just a huge transition to go from all the comforts of your home to something like a hotel. We also don't have a car here with us which is I think the hardest thing for me. Going from being able to go wherever I want whenever I want, to having to use a shuttle to get back and forth to the hospital and not really going much of anywhere else is hard. Although my mom and I are working on figuring out some of the trains near us so that we can go out and about and do some fun things while we wait for the girls arrival.
Today we had another round of appointments. It was a little bit of a stressful day since I never know when they are going to make the call to deliver the girls. So every appointment is a guessing game at the moment. So this morning we went to something called a serenity session which was very nice. It was a way to connect with some other moms who are pregnant with babies that have different issues. And it is a way to connect with the psychologist and other staff members that co-facilitate. We do different relaxation techniques and make little crafty things. It is just a nice little quiet spot during the week. And then we had the ultrasound right after that, which went fairly well. The girls still have the same issue that I talked about last week. Abby's blood flow is still irregular and now there is some evidence of some cord entanglement. So they need to still keep a close eye but it isn't t the point where they want to deliver them yet. But they are anticipating that I won't make it past 30-32 weeks, if I even make it there. (I am 27w2d right now) I know we serve a BIG God who is BIGGER than any blood flow issue and any cord entanglement and I am just waiting to see what his plan is for these two little girls.
We also met with the anesthesiologist and the neonatologist. Both were extremely helpful in explaining how delivery is going to go for both myself and the girls. They answered a lot of questions and put me much more at ease about the whole thing. We even found out that those who are going to be involved on the girl's teams when they are born are going to be going through some simulations next week with dolls that are being made to look exactly like our girls which is really cool. So they will be ready and prepared for almost any situation that may arise with them.
And then found out that I may actually have preeclampsia. I have had some pretty extensive swelling in my hands and feet over the past week or so and my blood pressure was also a little on the high side today. So they took some blood and will be running some labs and they will have me back on Tuesday to check me out again and see what my blood pressure is doing and what other things are doing to determine if I actually do have preeclampsia or if it is just another fun side effect of having twins.
I just wanted to also say a quick thank you to those of you who have donated to help with this whole situation with our girls. Your generosity has gotten us back and forth to the hospital several times over the past few months. And plane tickets were not cheap. It has also helped us pay for lodging and food and is now helping me as I am away from my husband and not able to work. We still have no idea what some of the medical bills will look like down the road and so we know that it is going to be a great help then as well. Riley and I truly believe that we are blessed beyond measure to have so many caring people in our lives and around our lives. It really is because of you guys that our girls have been given a chance. We thank you from the bottom of our hearts and pray the God blesses you all more than you can imagine.
We also very much appreciate your prayers! This transition makes everything incredibly real for us and my nerves are really starting to settle in. So please pray for peace in this whole thing. Pray for Riley as he is home and not able to be here at appointments. He is terrified that he will miss them being born so just pray for his peace of mind. Pray for my parents as my mom is here with me and my dad is home in NC and being apart is never easy. Pray for the rest of our families as they have to watch and wait from afar which is always difficult. And pray for our girls, that God's will, will be done. That these two little girls will be healthy and happy. That their blood flow gets better so that they can keep growing and have no other complications on top of being conjoined. We already love them so much and are so excited to meet them and hold their tiny hands.
My name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good!