Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Romans 8:28
Romans 8:28
So it's official.....we have been home longer than we have been in the hospital!!! How amazing is that! Being in the hospital felt like forever, but since we have been home it feels like time is FLYING!! The girls are doing so well....
Abby has started to get herself into sitting on her own, and it also getting up on to all fours. She rocks back and forth and will be crawling before we know it. I can't wait to see her explore and see what she is interested in rather than what is just around her. Her little personality comes out more and more every day. When you pick her up in the morning she basically jumps while in your arms while shrieking with happiness! She is so so happy! Erin is working so hard on standing. She is pulling up on everything and trying to get into standing. She will be in the middle of the floor on all fours and all of a sudden her little butt will be up in the air as she tries walking with her hands on the floor. It's amazing how determined this little girl is! I can't wait to see where she is a year from now. She is going to be running around me in circles! So, what are the next steps in terms of their medical lives..... This summer in June we are going to be traveling up to CHOP for a whole slew of follow ups yet again. We will see neurosurgery, plastic surgery, neurology, general surgery, our nutritionist, rehab, and possibly get a feeding evaluation for CHOP's feeding clinic. We will be super busy when we go up there. The girls most likely won't have any surgery for another year or so unless something new happens. I am glad that we still have time before that happens. I am not going to lie, I am not looking forward to it even though I know it is something that is necessary to keep their brains safe. We are working hard to try and get into CHOP's feeding clinic. The girls are still fed through their g-tubes about 98% of the time. They are able to eat different things, the problem is they don't eat enough and they just aren't "great" at it. We have a friend who we met through the Ronald McDonald house whose son went to the feeding clinic and it worked wonders for him. So we are hoping and praying that we will be able to get into that. We are dealing with differing insurance rules from the clinic and the insurance company so please pray that things work out and that we are able to get things pulled together so that we can get the evaluation done when we go up in June. If the girls meet the criteria for the program we will schedule a time to start the clinic and will be headed up to Philly for 4-6 weeks. It won't be easy on us as a family since Riley will have to stay home and work, but if it benefits the girls we are more than willing to do it! On another note there has been something on my heart lately that I wanted to write about... I receive so many messages, comments, email, letters telling me what a wonderful mother I am. How they don't know if they would be able to do what I do, how I am so brave and strong for sticking up for our girls and walking this tough road with them. And I appreciate the words more than anyone will know. Those words build me up and encourage me. On the tough days those words remind me I can do this. But a lot of the people who send me these messages are mothers themselves. And I just want to remind those moms that they are amazing. Every mother, whether you have children who are grown and out of the house, and your only knew your baby while they were in your womb, you are amazing. You are strong and brave and would walk through fire for your child. You've endured hard days and even harder nights. You've been worried more times that you can count, and you've loved your child with more love than you ever knew possible. You are an amazing mom! Everyone's journey is different but raising children, is raising children. I hope that you all know how wonderful you all are! And you are even more amazing for wanting to encourage me on my journey with my children. I am forever grateful!! In other news if you follow us on Facebook you will see that the girls are in People magazine this week. It's awesome to be able to share out journey with millions of people and hopefully encourage other families all around the county. So when you are on line at the grocery store pick up this weeks issue and have a nice read while you wait :) a few prayer requests for our family... - that we are able to get into the feeding clinic and have everything sorted out to get the evaluation done -that we are able to get a room at the Ronald McDonald house -that Riley and I will figure out a way to fix our cars....(finances are really tight at the moment) -that being in People magazine will encourage families who are going through medical struggles with their kids -for wisdom in some decisions Riley and I are making regarding some other things in our life We are so grateful for each and every one of you who keeps up with our family. For those who send us notes, donate to our go fund me, and send the girls gifts. You are all so kind and wonderful. We are beyond humbled by it. It's amazing how many good people there are in the world. We wish we could hug each and every one of you!
2 Comments
Isabella Lucas
11/10/2022 05:01:32 am
My ex-husband and I had always managed to stay friendly after our divorce in February 2017. But I always wanted to get back together with him, All it took was a visit to this spell casters website last December, because my dream was to start a new year with my husband, and live happily with him.. This spell caster requested a specific love spell for me and my husband, and I accepted it. And this powerful spell caster began to work his magic. And 48 hours after this spell caster worked for me, my husband called me back for us to be together again, and he was remorseful for all his wrong deeds. My spell is working because guess what: My “husband” is back and we are making preparations on how to go to court and withdraw our divorce papers ASAP. This is nothing short of a miracle. Thank you Dr Emu for your powerful spells. Words are not enough.
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AuthorMy name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good! Archives
March 2021
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