Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Today was the last "normal" day we will have with the girls for quite some time. By "normal" I mean that they aren't sedated, in pain, or have all sorts of lines and tubes coming off of them. It is such a harsh reality of the gravity of our situation.
From the beginning I have been preparing myself for these procedures. The ones where our girls would be having life changing but also life threatening surgeries. I knew they were coming and I have tried my very very hardest to be ready for them, but I honestly believe that there is nothing I can really do to prepare. Now that tomorrow starts the whole "pre-op" process I can't even describe how I feel.
When we heard all the risks and such when I was pregnant I understood them. I knew that there would be risks. But now I look at our incredibly sweet little girls and think that there is no way I could go on without them in my life. Moving forward with separating them means putting them in so much risk that it breaks my heart to make these decisions. It's decisions I would never ever wish on another person. To watch your healthy little children undergo incredible surgeries and procedures literally takes your heart out of your chest.
Tomorrow the girls will go to get their different lines places. Since the one type of line they need to get isn't quite large enough to push blood products (if God forbid is necessary) they will also be getting another more temporary but bigger line. Since these lines are quite invasive they will be intubated and put under general anesthesia for them. Since surgery is the next day they have decided it is in the girls' best interest to just stay intubated until surgery the next morning.
It is so hard knowing that tomorrow morning will be the last time I hear their little voices for some time. It will be the last time I see them bright eyed and happy until they are well on their way to healing/being separated. Since the way our girls are being separated has never been done before we are all slightly unsure of how it will go. We are not sure if the next few months are going to be painful for them or if they will just be "uncomfortable". We don't know if they will need to stay intubated for a day after surgery or for a few weeks. Everything is still unknown, and that isn't easy.
From the beginning everything with our girls has been "unknown". From figuring out how they were conjoined, if they could be separated, did they share brain matter, when would they be born, would they survive....there were so many unknowns and now we are right back in that place. Yes, there is a plan in place and a way that the Dr.s believe things should go, but there is no guarantee.
Today, even though it was normal and relaxed, was one of the hardest. The reality of all that is about to happen is starting to set in. Tomorrow will begin the "new normal" for the next few months. Please pray that the procedures will go well, that the girls will tolerate the anesthesia as well as they did last time, that the girls are easy to get IVs into, that all the lines will be placed easily, that the girls will be comfortable even though they will be intubated for 24 hours without really "needing" to be, for the surgeons, doctors, and nurses as they all prepare for this week, and for Riley and I and our families as we embark on the hardest part of this journey yet. The part where our girls are on the road to separation.
Our girls are already such miracles! And we know that God has all of this already planned out and has his hand on every single procedure, and every single person who will come in contact with Abby and Erin. He knows what is about to happen, and that gives me peace. His will be done in our girls' lives!
By the way the girls are just shy of 8lbs now!! It's so crazy how much they've grown in the last few weeks! They have gone from 2lbs when they were born to now almost 8. It is truly amazing to watch them grow :)
Below are some pictures of the last few days of just enjoying our sweet little girls! Gosh we love them so much! You never fully understand a parent's love for their child until you have one (or two) of your own!
My name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good!