Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Romans 8:28
Romans 8:28
It's amazing how fast we take being "healthy" for granted.
We have always been super careful when it comes to germs and the girls. While the girls were in the hospital they got several illnesses. The had a round about with RSV and ended up getting rhinovirus 3 times. Abby even ended up with some type of blood infection that made her septic. Almost every sickness would land them in the ICU for at least a week. Needless to say we have seen how easily the girls can head down hill when it comes to sickness, so we have always been super super careful. We have had a few little colds since being home but nothing like what we have going on now. On Thanksgiving Erin started a little cough. I honestly wasn't sure if it was because we weaned off of one of her reflux medications and reflux was just bothering her, but then the next day I knew she was sick. Since Friday Erin has been battling high fevers, extreme stuffiness, and a horrible horrible cough (which I am imagining means her throat is not very happy) We went to urgent care on Saturday night, and then to the pediatrician on Monday which between the two of them resulted in a steroid (which isn't doing much) and the recommendation of doing some breathing treatments here and there (which also hasn't helped). I was hoping that Abby would make it without getting sick since she was fine the first few days, and then on Sunday night she started a little cough and I knew. When we got to the pediatrician on Monday she had a fever of 103 and was coughing, super stuffy, and wasn't able to tolerate anything in her belly, even Tylenol didn't want to stay down. But I finally get enough Tylenol in her to get her fever down which in turn helped her tummy but it didn't help the cough or stuffiness. So fast forward to today (Wednesday) Abby still has a fever when it is not being controlled with Tylenol/motrin and Erin is the same. On top of all that we (the doctors and myself and Riley) are worried about the girls and their breathing... When the girls would get these kind of sicknesses in the hospital they would go downhill very quickly (respiratory wise). Sometimes in the course of just a few hours they would be struggling to breathe. So with this sickness we are being super careful. I am so grateful that I have a friend who lives close enough who has some of the same medical supplies for her daughter that we have for the girls. She was able to meet me and get me a few pulse ox stickies since we had only gotten 2 with our pulse-ox over a year ago. Yesterday morning I had texted her about how I was worried about Erin and needed some advice from another mom who deals with the same issues and she found out we needed these and made it happen that we got them that day (along with all of her daily responsibilities with her own medically complex child). It was a godsend and we are so grateful for her and her family!! Erin had been showing some signs of possibly respiratory distress and the only way to know for sure was to hook her up to the pulse ox. Once we got the stickies I hooked her up and she was lower than she normally is for her oxygen levels but not in an area where we needed to get help. So we have just been monitoring her (an Abby) hoping and praying that it doesn't come to that. Having children that had been in the hospital for so long gave me the chance to see things. You see how fast things change, so see how bad a little cold can get. It's a constant fear that you always carry with you. I thought once the girls weren't "babies" I wouldn't be as worried but man this sickness gave me a pit in my stomach a few times so far. It's weird there are points where I would think "just admit them to the hospital so that they can be taken care of" but I have to remember that home is best and just because I am nervous doesn't mean they need to be there. I never want us to be in a place where they need to be in the hospital because of a sickness but there is a little part of me that wishes we were just so I wouldn't be worrying all the time. I never thought I would think those thoughts....wanting my child to be inpatient, while being in the hospital brings fear, for us it also brings a weird comfort in knowing that the people most qualified to help are right there. I have to get into the mindset that I can do this and that the girls will get through it. Now on top of the girls having this sickness I have now started feeling under the weather (sore throat, over tired, stuffy, sneezy) and then this morning Riley woke up and was feeling it. So pray that this some how breaks and our family makes it through all this nasty and that we don't get it again. If Erin is still sick come Friday we will go back to the doctor to figure out what to do next. On another note we had a lovely thanksgiving and hope that you all had one as well. We are now in full Christmas swing despite being sick. I can't wait to see the girls figure out how to open presents and play with some new toys. Lately their eyes light up when they get to play with something new. Before they didn't really notice if a toy was new or not, but now they definitely do and it is so fun to watch their little wheels turning. Erin is beyond curious about the Christmas tree and wants to be under it all the time. Abby LOVES Christmas lights. We decorated the outside of our house and you could see the wonder fill her little face (even though she's sick). I can't wait to do the drive through lights with them this year and see how much they enjoy it. Christmas has always been my favorite holiday. There is so much sparkle and warmth and family time that comes with the Christmas season and I love it. I love that this will be the girls second Christmas at home! We will be able to spend it not only with my family, but also with Riley's family since they are all able to come down for the holidays this year! It is going to be wonderful. We hope and pray that you are able to spend quality time with your friends and family this holiday season. We are trying to take a little step back from the hustle and bustle and enjoy being together and we pray you will too! Thank you so much for all of your love and support!! We are beyond grateful!!!
7 Comments
Maureen Wrightsman
11/28/2018 08:40:27 am
Heather prayers sent for the girls and you and Riley.
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11/28/2018 08:57:42 am
Get better real soon Andy and Erin sending you lots of hugzzzz xxxx,xxx from the UK
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Jennifer
11/28/2018 01:05:15 pm
Thank you for sharing the pictures of your beautiful family! We will keep you all in our prayers that the germs leave soon!!!!
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Reesha
11/28/2018 10:38:18 pm
Poor babies! I hope they recover quickly, so they can enjoy the holidays! I’ll send extra prayers for them and for you too momma, I hope you feel better! Even though I know they’re not feeling well, they’re still absolutely adorable ❤️
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12/1/2018 08:56:31 am
Happy holidays to you all~ thank you for sharing these beautiful girls with us. Always sending love and positive energy to Abby and Erin, from Minnesota!
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1/24/2019 03:42:46 am
Dear Heather and Riley,
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Isabella Lucas
11/10/2022 05:03:07 am
My ex-husband and I had always managed to stay friendly after our divorce in February 2017. But I always wanted to get back together with him, All it took was a visit to this spell casters website last December, because my dream was to start a new year with my husband, and live happily with him.. This spell caster requested a specific love spell for me and my husband, and I accepted it. And this powerful spell caster began to work his magic. And 48 hours after this spell caster worked for me, my husband called me back for us to be together again, and he was remorseful for all his wrong deeds. My spell is working because guess what: My “husband” is back and we are making preparations on how to go to court and withdraw our divorce papers ASAP. This is nothing short of a miracle. Thank you Dr Emu for your powerful spells. Words are not enough.
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AuthorMy name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good! Archives
March 2021
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