Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Romans 8:28
Romans 8:28
I've always knew I wanted to be a mom. Even when I was a little girl my favorite thing to do was play with my dolls. But man I had no idea the amount of mental fortitude it would take actually being a mom.
The Friday before mothers day the girls were acting a little funny. Abby was cranky and clingy and I thought she might be getting sick. Then on Saturday they seemed to be pretty normal so we went about our Mother's Day plans on Sunday. Well towards the second half of the day they both became super cranky (Erin more than abby) and very clingy. By Sunday night Erin had a 103 fever and was completely miserable. Fast forward a week and a day and that brings us to today. Abby is stuffy and cranky and will get a slight fever every now and again. Erin on the other hand is very stuffy, runny, and has a nasty nasty cough. She also keeps running a decent fever every now and then, and you can tell when the fever comes back. Her eyes get dark rings around them, she gets really upset and tired, her nose starts running, and her cough gets pretty constant. It's been exhausting dealing with this for over a week now. We went to the doctor for a second time yesterday and ended up getting some chest X-rays for Erin just to be safe. Her cough has been the main worry for me. She doesn't sleep well and our nights are spent in steamy bathrooms or next to the nebulizer. So we thought the X-ray was a good idea. It came back clear which is good news, but not good news in that there isn't something to "treat". The doctor thinks that she has adenovirus which seems to be making the rounds right now. Adenovirus is a common viruses that infects the lining of your eyes, airways and lungs, intestines, urinary tract, and nervous system. They're common causes of fever, coughs, sore throats, diarrhea, and pink eye. Which makes a lot of sense since I was wondering why their eyes have been kind goopy, not pink eye goopy but more watery and crusty than usual. So unfortunately it is just a waiting game till everything gets better. This is one of the worst things because you cannot do anything to help them except Tylenol and cuddles, and they're still miserable most of the time. Erin wants to be held almost 100% of the time. And it isn't just being held, it's like holding a restless worm that wants to burrow into you haha. She is a super snuggler and just wants to snuggle as hard as she can. I know it is so hard on them (especially Erin who seems to have it much worse) but the emotional exhaustion I feel is crazy. I have felt this way with other sicknesses they get but this has been the longest sickness they've had thus far, and the most sleepless. So besides just being tired, I'm just drained. But being a mom gives you super strength. The love you feel for your children seems to somehow propel you through any type of exhaustion you might feel. Don't get me wrong, yes we need breaks, yes we need time away from the kiddos, and need to make sure we are taking care of ourselves, but that mama love seems to give you strength to get through. There are moments where I feel like I'm falling apart and I just sit down, take a breath, and then get back to it. Please please please pray for these little munchkins. They are exhausted and we just want them to be better and happy. We have missed almost two weeks of therapy because of this and we are so ready to get back to our normal routine and get some good sleep again. Also pray for Riley since he isn't feeling well. I wasn't feeling great for a few days but am basically back to normal, but Riley seems to have gotten this pretty nasty virus now as well. In other news we are still trying to move. This is like the never ending saga. Still waiting on the tax returns which seem to like to never come. But hopefully we will get it within the next few weeks and be able to move to a place that has more space and and make it easier for the girls to use their equipment. We head to Philly in a little over a week for all of the girls follow up appointments. We are hoping again to stay at the Ronald McDonald house and be able to see some friends at CHOP. It's a long trip but its so worth it for the amount of care we get from them. Next time I write I should have some nice updated information about how well the girls are doing. We are excited since we haven't seen our CHOP doctors in 6 months! We so appreciate each one of you who follows our journey! I love when I am out and about and I run into people who follow us on facebook and read the blog. I love hearing how the girls have inspired you. A lot of how well they are doing has to do with all of you. The well wishes, wishlist items, gofundme donations, and letters really help Riley and I be better parents. It encourages us to keep moving forward . It humbles us knowing how many good people are out there and lets us teach that to our girls as they grow. To grow up knowing you have people all around the globe in your corner will be incredible for them! You guys are seriously awesome and we can't thank you enough. You've been an answer to prayers. There have been days where I was sitting on the couch crying because a certain bill is hard to get paid, and then a go fund me comes in, or we are trying to figure out which diapers were the cheapest because we were running low, and we would receive a few pack the next day and some every month! I wish I could express how grateful we are to each one of you. Please know we deeply mean it when we say thank you. And especially thank you for the prayers......"where two or more are gathered".....and we have people all over the word gathered who pray for our family, and I truly believe it's made all the difference. We love you all!!!
1 Comment
Isabella Lucas
11/10/2022 05:01:12 am
My ex-husband and I had always managed to stay friendly after our divorce in February 2017. But I always wanted to get back together with him, All it took was a visit to this spell casters website last December, because my dream was to start a new year with my husband, and live happily with him.. This spell caster requested a specific love spell for me and my husband, and I accepted it. And this powerful spell caster began to work his magic. And 48 hours after this spell caster worked for me, my husband called me back for us to be together again, and he was remorseful for all his wrong deeds. My spell is working because guess what: My “husband” is back and we are making preparations on how to go to court and withdraw our divorce papers ASAP. This is nothing short of a miracle. Thank you Dr Emu for your powerful spells. Words are not enough.
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AuthorMy name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good! Archives
March 2021
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