Our Journey with Conjoined Twins
Abby & Erin
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Life is a little hectic these days, trying to prepare what we can for the months ahead. Things in my life have changed quite a bit since the last time I wrote on here. I am officially 23 weeks pregnant and feeling huge. Daddy finally felt the girls move for the first time :) and I am feeling them move every day!
First of all, getting the amount of information like we did takes quite a while to process let me tell you. There are still things that I am dealing with on a daily basis. One of those being these babies and their umbilical cords. We went back to The Children's Hospital of Philadelphia (CHOP) this past Friday for another ultrasound to keep track of what their cords seem to be doing. Now mind you if you remember the last time we were there, their cords were in a knotted mess (they showed me on an MRI picture they had) and it looked pretty bad. That was very scary. So the two weeks between visits were long. I would wonder everyday if they were still ok. Some days I would feel them kicking and other days I would feel almost nothing, and those days were never fun. So I just had to put it into God's hands and trust that his will is good and perfect and that what he wanted was going to be done. There was nothing I could do and nothing Riley could do but wait for our next ultrasound. Well this past Friday we went in and by nothing short of a miracle they have untangled their cords. The doctors told us that that was going to be an unlikely scenario, but by the grace of God and all your prayers they untangled. To get good news is such a blessing in times like these when you just feel like everything seems to be piling up. Now don't get me wrong the girls aren't "out of the woods" yet. They can re-tangle and untangle their cords over and over we just need to keep praying that it doesn't affect them or their blood supply.
The other major thing that Riley and I have been dealing with is the impending relocation I will have to go through. I am not worried about moving to Philly. I went to college close to there and I have a lot of friends and family who live within a few hours of there. What I am worried about is having to leave my husband. He is my absolute best friend and supporter. He has been a rock for me throughout this entire thing, and to know that he isn't able to come with me scares me so much. I know he will be able to visit when he can, but he needs to stay here in NC with his job to create a life for our very special family. We don't want to live in the North permanently (been there and done that, we both grew up in NY) so for him to move with me doesn't seem to make much sense. We aren't sure on the amount of time that the girls will be in the hospital but it will most likely be around a year. With God on our side it could be shorter but as the saying goes we have to hope for the best, and yet plan for the worst. So going a year without being able to wake up next to my husband every day, that is going to be a really tough one for me. I waited so long to be married, and it feels like I almost have to put it on hold which is really hard.
We have also been dealing with new changes in our finances. I am officially done working because of all the travel I am doing. And going from two incomes to one is not an easy thing. So that is stressful on top of everything else we are going through. Also trying to navigate my new role as a "homemaker" is a little hard for me since all my body wants to do is sleep, but there are dishes in the sink, bills that need to be paid, laundry that needs to done, floors that need vacuuming, and the list goes on. Our normal life has kind of been on hold for the past few months in dealing with all of this. So I am now playing catch up in hopes of having everything set for when I leave in July.
You know they say "God will never give you more than you can handle" but sometimes it feels like I just don't know if I can do this. I know I don't have a choice, I love my girls already so much, but it is just not an easy road. My heart breaks for every other parent whose child deals with different birth defects or illness because I feel myself right there with them. Certain movies can turn me into a puddle of tears within seconds flat. We know God has a great and perfect plan for us and our family, it is just so hard when you don't see the light at the end of the tunnel. It feels like we could be in the night for so long without seeing day. But joy comes in the morning.
I know I seem to do this in every post, but we are so incredibly grateful for each and every one of you who keep up with our life, for your encouraging words, your unending prayers, and generous support. Because of all of you there is a chance that our girls will be able to one day look at each other as separate healthy girls.
Prayer requests :
-Abby and Erins Cords to stay separate
-The girls will make it to 37 weeks.
-Traveling expenses to be met
-For Riley and I as we prepare to be living in two different places
-That God would be glorified through all of this.
My name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. We are trusting that God is going to work all this out for his good!